Sunday, August 31, 2008

Friday.. The Last Day of Testing Before the Surgery











We arrived Friday August 29 at Lucile Packard Children's Hospital about 10:20 am. Drake was scheduled for a Cerebral Angiogram at 11:00 am. The check in went well and they were pleased Drake's IV line was still working great! Dr. Chen was Drake's Anathesiologist. He was wonderful to work with and put Drake at ease. There always seem to be one person each day that went above and beyond for Drake. Today it was Dr. Chen! He informed us of the procedure and process that would unfold. Unfortunately our 11:00am appointment turn into a 1:00 pm appointment. At 1:00 pm we were told there was an emergency and there would be a two hour wait. We expressed our concern about Drake having no food since 10:00pm the night before and only 3 ounces of water at 7 am that morning. Our 3:00pm turn into a 4:15 test. It was a very long day. Drake was listening to his music and we kept him entertained.


California Ride...



Friday August 29, 2008 started out with Drake's new buddy David, a student from Oregon State University and a friend of Meredeth. David shared his Hot Red Mustang Convertible with Drake and let him get behind the wheel! Drake felt CA Cool! The day started out with a way cool attitude!

Friday, August 29, 2008

THE COUSINS !




There is always fun on the farm when the cousins are around! Sharing a silly little moment before Drake headed to Standford, CA. The littlest one on the left is Savannah followed by her cousins Caitlin and Delaney and of course Drake!


View the WEEK TV Channel 25 Peoria, IL for the news story on Drake Taylor.

http://www.week.com/news/local/27201564.html
View the Article on Drake Taylor in the Peoria Journal Star by Ryan Ori and photographer Matt Dayoff printed on 8/19/08.

http://www.pjstar.com/features/x1033420827/Teen-shows-his-gigantic-heart

Papa & Grandma Dempsey

Hi Papa and Grandma. Things are going very well here in California! I keep telling everyone about my animals and how I miss them. Thanks for taking care of the barn for us! See you soon!
Drake

Our Favorite Sitters!

Amanda and Alana Hitchell have been apart of Drake’s life since he was just a baby. In fact when the ladies both went away to college we were at a total loss to find someone Drake loved to see! Amanda met Drake first when he was very young and then we were excited that she had a younger sister that would like to babysit after she went away to college. I think there were times Drake was glad we were going out so he could see his friends. The Hitchell family will always hold a special place in our hearts!

Thursday, August 28, 2008

Meet the Malnick's

We have been adopted by a wonderful family here in Stanford, CA. Carol Malnick and her daughter Meredith have opened their beautiful home in Palo Alto, CA for us to share and enjoy during Drake’s stay here at Stanford. What a BLESSING! We come home to beautiful gardens, a lovely home and great soft beds! Carol and Meredith have spoiled Drake from the moment he walked into their door! They are both cheerful happy people with great big hearts! I can go on forever about their generous spirit and compassion. They are truly a Gift from God. As you can see from the picture, they surprised Drake with an Ironman costume. Drake keeps telling Carol he is going to design a robot that will pick up laundry and clean his room, a robot just like Ironman! He has promised Carol that she can have one too!

Meet Max the Rocket Guy


Max the Rocket Guy. When Drake starts talking about his robots and rockets he now refers to his new friend Max. Max works here at Stanford University and a local tech company. He came over to the Malnick’s home Monday night to show off the rocket he shot off in the dessert. That’s what Max does, he builds robots and rockets. “Very Cool” Drake states after he watches the video of Max shooting all kind a rockets.

Thursday August 28, 2008



Drake started his day off Thursday with a phone call to Aunt Barb in Peoria, IL. He just wanted to say hi and check on things.
The Daddy Taxi Express was in operation once again as the walk to and from the testing areas can be long!

Who is charming who...



Drake met with Robert Dicks today (8/28) after lunch at the Stanford Cafeteria. Robert is the Senior Manager for Media Relations at the Lucile Packard Children's Hospital. Drake and Robert had a lot in common as they shared some stories. They both love John Wayne and old western movies. Drake was wearing his genuine faux snake skin boots today and certainly could play the part. Robert asked if the hospital could do a story on him and Moya Moya. Drake quickly replied "sure!" as they chatted some more about Drake's favorite things. As we walked away from the meeting Drake told us "I like that guy!".


Kathleen Biederman, a research nurse at Stanford Medical Center helped Drake understand the part he is playing in Dr. Steinberg's research about Moya Moya. Kathleen was a great help in our very busy day at Stanford!

MEET THE STANFORD TEAM

Thursday August 28 was "Meet Dr. Stienberg Day". After discussing the surgery we took a quick picture. Dr. Gary Steinberg is sitting next to Drake, with nurse coordinator Teresa Bell-Stephens and Dr. Tim on the far left.

I Can't Reach My Nose...


"Daddy hold my nose!" As we were walking down one of the hallways Drake did not like the smell of the antiseptic they were using in this particular spot. Dad and Mom didn't notice much put it drove Drake crazy. Drake could not reach his nose because he had the IV central line in one hand and a blood draw patch on the inside elbow of the other! The smell quickly passed but I thought the picture of the two of them was hilarious!

The Blood Draw



Shortly after Mom and Dad promised a no needle day on Thursday Aug 28 we were told Drake needed blood drawn for the pre-surgery work-up. Ok... who is going to tell him we were wrong! As we walked down the hallway mom finally confessed she made a mistake and he was on his way to give blood and a needle was needed to get it done. "Just tell them to use the smallest needle" as he continued casually down the hallway. When we walked into the bright cheerful room with fun pictures on the walls his friendly lab technician put him at ease. She used the smallest needle and Drake watch the whole thing! We encouraged he to look away but he was tough! We gave her an A+ for the day. We knew when we met her she was going to be good and proved us all right!

You can make a difference...

Meet Paulo, Drake's buddy in the Nuclear Medicine Department of Stanford. Paulo is the technician every person needs if you have to go through all these tests. Everyone in this department is excellent but Paulo goes above and beyond. He friendly and kind demeanor put Drake at ease and a smile on Drake 's face. He greeted Drake in the waiting room lobby on the second day of the brain scan with a big smile and assured Drake everything was going to go just fine.
Paulo keep up the great work! You do make a difference in a person's day!

NOT AGAIN !




Thursday, August 28 was a second Nuclear Brain Spect Scan with out the Diamox. Drake's technician put a pillow under his cowboy boots to make him more comfortable. the only thing he dreaded was the tape around his head and chin again. As usually, Drake was a trooper!

Let's Go Home...

Heading home after a day of testing at Stanford Hospital...

Wednesday, August 27, 2008

TEAM TAYLOR

And for the supporting roles...
Randy & Beverly Taylor, better know as...
"Drake's Mom and Dad !"

Custom Designed by Drake Taylor




Tammy and Carol are special friends of Drake's from the Police Department of Bartlett, IL. Drake had an opportunity to make some of his custom earrings for Tammy and Carol while they visited the barn. Drake picked out some heart charms to add to the earring as the girls have definitely stolen his heart!

THE TAYLOR EXPRESS !


That Happy Smile !


As Drake nears the time to his surgery date we have had many talks. As you can see from the picture he remains in good spirits!
The doctors and staff here at Stanford Medical Center are wonderful to Drake and his parents. They take the time to make sure we understand the test and what to except afterwards. The communication is excellent!

Friends in Special Places!



As many of you know Special Olympics is a big part of our lives. Drake has attended the Illinois State Special Olympic Games for 3 years and has met some wonderful new friends along the way. There are two girls that Drake talks about the most, “the girl cops”. The girl cops are from Bartlett, Illinois and are a Tammy, police officer and Carol, an office manager of the Bartlett Police Department. They are both active in the Special Olympics Torch Run, the largest supporter of Special Olympics Illinois. They visited Drake at his school and barn before he left for Stanford, CA. They surprised Drake during his lunch hour and then took a tour of his school. Some of Drake’s classmates joined in on the fun and had to show off some of their talents!

Good Morning Drake !


Drake started his Wednesday (8/27) off with dancing to his iPod tunes! His new iPod was a generous gift from the Murphy family. Amy Murphy and her sons Matt and Jack, wanted Drake to have some entertainment while hanging out at the hospital. Perfect gift! Our friend Cheryl from Northminster Presbyterian Church and her husband Brad fixed it all up with some music for the road trip. Since Drake’s mom and dad are not electronic wizards we needed some help from our friends! What a wonder gift.

When we arrived in California Meredith, a sophomore at University of Oregon and our generous host Carol’s daughter, added some new tunes to the iPod so Drake would be CA hip! It certainly has helped Drake relax and just chill. Once again the younger generation is light years ahead in technology!

The Nuclear Brain Spect Scan 8/27/08






Drake started his day off at the Stanford Hospital around 9:30am. Drake was scheduled for a Nuclear Brain Spect Scan with Diamox this morning. Drake had to relax and not move or talk for about an hour while the nuclear solution and Diamox distributed through his body. Drake was then moved to the camera room while he laid still for two sessions of about 35 minutes while the camera was filming. We were at the hospital until about 1:00. He was a little tried but said he felt good. He returns back Thursday for the same test without the Diamox.

Tuesday, August 26, 2008

HAPPY TRAILS ! !


It always HAPPY TRAILS when there are cookies to eat!! When we arrived at Carol's home on Saturday there was an amazing basket of cookies on the table. A closer view and Drake realized they were COWBOY COOKIES! This very cool basket of cookies was sent by his great Dunlap Middle School teachers, Mrs. Carrier, Mrs. Theobald and Mrs. Best. Drake is still eating on them and shares a few nibbles once in awhile! What a wonderful surprise! Great Job Our Dear Friends!

You want to EAT WHAT !



Where else but California can you find Fish Tacos! Drake spotted the fish sign on the way to the hospital Tuesday morning. "Can we go there for lunch?" Dad quickly said "You have got to be kidding, fish tacos, no way!" Drake teased Dad for awhile and the conversation faded. We no sooner left Stanford Hospital and Drake said " I am hungry for fish." We stop at a restaurant near by and Drake quickly told us it was not the right one! Randy asked Drake "Which one are you talking about?" Drake replies, "The taco one Dad, you know which one!" Daddy had a big heart and surrendered as we drove down the road. Drake loved his fish tacos. Even Daddy said they were pretty good!


Tuesday August 26 was a no needle day! Drake had Neuropsychological Testing done today by the office of Dr. Penelope Zeifert. When asked "How did it go?" he answered back "A lot of questions Mom!" So all in all a painless day!

It was a short day at the hospital today. We arrived at 8:00 am and were out of there by 11:00! So we ventured around the area to see what we could find.

Monday, August 25, 2008

Amanda Riding the Bull !

Drake's friend Amanda riding the electric bull at the Illinois State Fair.

Give those cowboys a run for their money!



Drake wanted to show off his IV line in his right hand. He is ready to go for the next testing on Tuesday (8/26). Drake will have testing everyday this week with his surgery planned for Tuesday 9/2/08.

Stanford Visit First Day of Testing

Drake had to receive an IV in his right hand for the contrast die to be administered during the test. The hospital staff here is wonderful. The care and comfort of the children are their first focus. Drake said he was tough and could handle the needle. They then asked him if he wanted to walk or ride to the testing floor. Drake took advantage of all the attention and said "Let's Ride!"

Drake's first test at Lucile Packard Children's Hospital. Drake had an MRA with and with out contrast on August 25. He was a real trooper! He chose the pictures of his first day to share with everyone. His spirits are good and the hospital staff is wonderful!

Sunday, August 24, 2008

State Fair Awards

Illinois State 4-H Fair


Drake attended the Illinois State 4-H Fair with two of his best buddies from the Dunlap Dynamite 4-H Club. Abigail and Amanda Carter shared the day with us in Springfield and we all had a great time! When you are attending a State Fair you have to enjoy the “regional flare”. We decided to find things you only have an opportunity to experience in this unique environment call “State Fair”! So when you are hungry you can’t just eat a burger you have to find something different, right? How about pizza on a stick! Where else would you find this amazing combination! Yes, the pizza was as big as Amanda’s and Abigail heads, let alone bigger then Drake’s all together! It took awhile to finish them off but we managed. Now we needed is a little entertainment. So Amanda took on the challenge of riding the electiric bull. As I signed the release form as “guardian” I was wondering how I was going to explain this to her parents! Drake was so excited and cheering Amada on. She could hardly refuse at this point. Amanda hung on for quite awhile, we were all very impressed with the performance!
Drake with a few of his 4-H Projects. Drake is standing by his photography project, a table he made for his room with the help of his dad and his famous pink glass beaded earrings.




Drake with his Japanese Black Tail Buff Bantam Chicken at the Peoria County 4-H Fair.
A Blue Ribbon winner!

Drake & Dunlap Dynamite 4-H Club.

“What have you been up to lately Drake?”, asked his friend at the first day of school.

Let me tell you, as the chauffeur of Drake Taylor, his life has been full! One of the highlights of the summer was the Peoria County 4-H Fair. Drake showed three trio set of his bantam and standard size chickens, along with six other projects. He proudly stood in line awaiting the opportunity to speak to the judge for each project.

The Visual Arts- Glass category was the one his was most excited about. Drake made a pair of pink glass bead earrings. He spent a lot of time making the pattern, taking beads off, rearranging and then starting all over again. This particular pair of earrings took over 45 minutes to make! He wanted them just right. “I want the judge to like them mom, this is my favorite.” When he finally said he was done designing he called me over to turn the top of the wire into a loop to attach to the earring clip. They were beautiful; each bead was a different shade and shape of pink. He was very proud. “I like these mom, they are a winner!” A winning pair of earrings they have been. Drake won Class Champion in the glass division, a superior ribbon, 4-H Trophy and qualified for the Illinois State Fair. Drake presented the earrings to the State 4-H Fair on August 13 in Springfield, IL and went on to win an Award of Excellence and a Superior State Fair ribbon! He is now qualified to attend Legislators Day next spring to present his project once again. Those pink glass beaded earring hold a very special place in his heart as Drake just learned this spring how to make jewelry from his Aunt Brenda when she was visiting us from Sand Springs, OK.

Drake went on to show his chickens later on that morning and won an additional 14 ribbons along with to class champions with his Black Austrolorp Chickens. His favorite of all the chickens are his Black Tail Buff Japanese Bantams. As you can tell from the pictures, Drake loves his chickens! Drake also showed his miniature call ducks and won a blue ribbon is that class as well.

It was an award winning few days at the 4-H Fair. Drake won a total of 31 ribbons including 4 Class Champions, 6 Superior Ribbons, 1 State Delegate and 2 Alternate State Fair Delegate awards, and a 4-H trophy. As many of you know, Drake has always loved to create and design things. The Dunlap Dynamite 4-H Club has given him an opportunity to show his treasures off!

Tuesday, August 19, 2008

A Grateful Teacher...

I have had the privelege to be Drake's teacher at Dunlap Middle School for a year. I'm so grateful to God for placing such a wonderful and unique young man into my life. He has taught me more than I ever imagined. As I read these posts, I can do nothing but smile. :) Drake has touched so many lives and doesn't even know it. His love for his family, friends and animals is contagious. He has taught me so much about what it truly means to love others. I'm so blessed to know him and his incredible family.

Jeremy and I are on our knees for all of you. God is good...Trust in Him. May you come to know the depth, width, height and length of His love for you during this difficult time. One other thing. Every time I hear Drake talking about his sheep I think of Psalm 23. There is so much hope and encouragement found in these verses.

Psalm 23
The Lord is my shepherd;
I shall not want.
He makes me to lie down in green pastures;
He leads me beside the still waters.
He restores my soul;
He leads me in the paths of righteousness For His name's sake.
Yea, though I walk through the valley of the shadow of death,
I will fear no evil;
For You are with me;
Your rod and Your staff, they comfort me.
You prepare a table before me in the presence of my enemies;
You anoint my head with oil;
My cup runs over.
Surely goodness and mercy shall follow me All the days of my life;
And I will dwell in the house of the Lord forever.

We share an AMAZING God!
All My Love and Prayers,
Lindsay Carrier
August 18, 2008 6:35 PM

Saturday, August 16, 2008

Drake we will pray for strength and a speedy recovery for you so you can soon be back to making jewelry:) You are a special guy and your parents are special too. Thanks for setting up this blog so we can track your progress. God Bless you and mom and dad.
Jackie, Larry and Hannah

Thursday, August 14, 2008

Drake Taylor's Benefit


Family and friends of Drake Taylor invite you to attend a celebration of support for Drake's upcoming journey. Drake has been diagnosed with moya moya, a rare blood vessel disorder of the brain.


Friday, August 29th, 2008
5:00 - 10:00 P.M.

Where: Kickapoo Creek Winery
6505 N. Smith Rd
Edwards, IL

$20.00 per person
includes dinner

Dinner Buffet 5:00 - 7:00 P.M.

Look Forward to...
Silent Auction, Live Music, Bake Sale, Dinner Buffet, Cash Bar

Highlights of the Night

Raffle Prizes Include:
GPS Navigational System
Nintendo Wii
2-Round Trip tickets via Allegiant Air to Las Vegas
Bronze Cowboy

Tickets are $10.00 each or 3 for $25.00. Need not be present to win. Pre-sale raffle tickets may be purchased at 309-693-6180.

Silent Auction Items

7 Night Getaway Accommodations to...
Colorado, Sannibel Island, Cheasapeke Bay, and Cobos San Lucas

Bradley Sports Package

Fine Art by Various Local Artists, Home Decor, Gift Baskets, and Certificates!!!
Advance tickets can be purchased at Exhibit A Gallery in Junction City

For more information about Primordial Dwarfism visit:

For more information about Drake's surgery visit:

Drake's Blog can be found at:

For more information please call
309-692-6224